ممارسة الأنشطة والاحتياجات المختلفة للراشدين ذوي اضطراب طيف التوحد من منظور الأمهات Practicingactivities and different needs of adults with Autism spectrum disorder from mothers’ perspective

نوع المستند : بحوث فی مجال علم النفس والصحة النفسیة

المؤلف

أستاذ علم النفس المساعد بمرکز معوقات الطفولة ــ جامعة الأزهر

المستخلص

هدف البحث إلى تقييم درجة ممارسة الراشدين ذوي اضطراب طيف التوحد لأنشطة الحياة اليومية المختلفة، والتعرف على الاحتياجات الفعلية غير الملباة، والفروق في الاحتياجات وفقا لبعض المتغيرات الديموجرافية، ومعرفة أکثر الاحتياجات أهمية للراشدين ذوي اضطراب طيف التوحد من منظور الأمهات.وتکونت عينة البحث من (49) من أمهات الراشدين من ذوي اضطراب التوحد من الجنسين (ذکور وإناث)، وبلغ المتوسط الحسابي للعمر الزمني (52,8) سنة بانحراف معياري (4,4)، وبلغ متوسط العمر الزمني للأبناء (6,25) سنة بانحراف معياري(1, 5). واستخدمت الباحثة لجمع البيانات استبيان الأنشطة والاحتياجات المختلفة للراشدين ذوي اضطراب طيف التوحد. فروض البحث: تدني النسب المئوية لأداء الراشدين ذوي اضطراب طيف التوحد لأنشطة الحياة اليومية من منظور الأمهات. توجد فروق ذات دلالة إحصائية في النسب المئوية بين الاحتياجات الفعلية غير الملباة والاحتياجات المتاحة للراشدين ذوي اضطراب طيف التوحد من منظور الأمهات. توجد فروق ذات دلالة إحصائية بين متوسطات رتب الاحتياجات المختلفة وفقا لبعض المتغيرات الديموجرافية (النوع ـــ درجة الإصابة) لدى الراشدين ذوي اضطراب طيف التوحد من منظور الأمهات. هناک احتياجات أکثر أهمية للراشدين ذوي اضطراب طيف التوحد من منظور الأمهات. وتوصلت النتائج إلى: وجود انخفاض في أداء الراشدين ذوي اضطراب طيف التوحد لأنشطة الحياة اليومية، فضلا عن وجود فروق ذات دلالة إحصائية بين الاحتياجات الفعلية غير الملباة والاحتياجات المتاحة للراشدين ذوي اضطراب التوحد، کما توجد فروق ذات دلالة إحصائية في الاحتياجات المختلفة تبعا لدرجة الإصابة. وظهر أن الحاجة إلى السيطرة على نوبات الهياج والمشکلات السلوکية من الاحتياجات الأکثر أهمية للراشدين ذوي اضطراب التوحد من منظور الأمهات.
The research aims to assess the degree of practicing various daily-life activities by adults with autism spectrum disorder, to identify the actual unmet needs, the differences in needs according to some demographic variables, and to know the most important needs of adults with autism spectrum disorder from mothers’ perspective.
Sample consisted of (49) mothers of adults with autism spectrum disorder of both sexes (males and females). The mothers’ mean age was (52.8) years with a standard deviation of (4.4). The mean age of adults was (25.6) years with a standard deviation of (5.1). The researcher used to collect data questionnaire activities and different needs of adults with autism spectrum disorder. Research Hypotheses: 1. Low percentage of adults with autism spectrum disorder practice daily-life activities from mothers’ perspective. 2. There are statistically significant differences between the actual unmet needs and available needs for adults with autism spectrum disorder from mothers’ perspective. 3. There are statistically significant differences in needs according to some demographic variables (type - degree of injury) in adults with autism spectrum disorder from mothers’ perspective. 4. There are more important needs for adults with autism spectrum disorder from mothers’ perspective. The research concluded that, from mothers’ perspectiveof adult with Autism spectrum disorder, there is a decrease in the performance of adults with autism spectrum disorder for daily-life activities in addition to the statistically significant differences between the actual unmet needs and the available needs and the statistically significant differences in needs according to the degree of injury. Agitation control and behavioral problems seem to be the most important needs of adults with autism spectrum disorder.

الكلمات الرئيسية

الموضوعات الرئيسية


-American Psychiatric Association (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). American Psychiatric Pub.
-Anderson, A.; Barbaro, J. & Maybery, M (2016). Introduction to Special Issue “Autism Spectrum Disorder: Research and Practice” The Australian Psychologist Society, 51,p 259 – 260. 
-Anderson, C., Lupfer, A, & Shattuck, P. T (2018). Barriers to Receipt of Services for Young Adults with Autism. Pediatrics, 141(Supplement 4),p300-305.
-Baker-Ericzén, M. J., Brookman-Frazee, L., & Brodkin, E. S (2018). Accelerating research on treatment and services for transition age youth and adults on the autism spectrum . Autism: the international journal of research and practice, 22(1),p 2-5
-BAL, V. H., Kim, S. H., Cheong, D., & Lord, C. (2015). Daily living skills in individuals with autism spectrum disorder from 2 to 21 years of age. Autism, 19(7), p774-784.
-Ballester, P., Martínez, M. J., Javaloyes, A., Inda, M. D. M., Fernández, N., Gázquez, P., & Peiró, A. M (2019). Sleep problems in adults with autism spectrum disorder and intellectual disability. Autism Research, 12(1), p66-79.
-Bishop-Fitzpatrick, L., Mazefsky, C. A., & Eack, S. M (2017). The combined impact of social support and perceived stress on quality of life in adults with autism spectrum disorder and without intellectual disability. Autism,doi: 10.1177/1362361317703090
-Brown-Lavoie, S. M., Viecili, M. A., & Weiss, J. A (2014). Sexual knowledge and victimization in adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(9), P2185-2196.
-Burke, S. L., Wagner, E., Marolda, H., Quintana, J. E., & Maddux, M. (2019). Gap analysis of service needs for adults with neurodevelopmental disorders. Journal of Intellectual Disabilities, 23(1),p 97-116.
-Carter, J., Broder-Fingert, S., Neumeyer, A., Giauque, A., Kao, A., & Iyasere, C (2017). Brief Report: Meeting the Needs of Medically Hospitalized Adults with Autism: A Provider and Patient Toolkit. Journal of autism and developmental disorders, 47(5),p 1510-1529
-Chan, W., Smith, L. E., Hong, J., Greenberg, J. S., Lounds Taylor, J., & Mailick, M. R. (2018). Factors associated with sustained community employment among adults with autism and co-occurring intellectual disability. Autism, 22(7), p794-803.
-Culpin, I., Mars, B., Pearson, R. M., Golding, J., Heron, J., Bubak, I., & Rai, D. (2018). Autistic traits and suicidal thoughts, plans, and self-harm in late adolescence: population-based cohort study. Journal of the American Academy of Child & Adolescent Psychiatry, 57(5), p313-320.
-D'Astous, V. A (2017). How and by whom are the current and anticipated future support needs of adults with autism spectrum disorder met? (Doctoral dissertation, King's College London)
-DaWalt, L. S., Usher, L. V., Greenberg, J. S., & Mailick, M. R (2019). Friendships and social participation as markers of quality of life of adolescents and adults with fragile X syndrome and autism. Autism, 23(2), p383-393.
-Dudley, K. M., Klinger, M. R., Meyer, A., Powell, P., & Klinger, L. G (2018). Understanding service usage and needs for adults with ASD: The importance of living situation. Journal of autism and developmental disorders, p 1-13.
-Farley, M., Cottle, K. J., Bilder, D., Viskochil, J., Coon, H., & McMahon, W (2018). Midlife social outcomes for a populationbased sample of adults with ASD. Autism Research, 11(1), p142-152.
-Gerber, A. H., McCormick, C. E., Levine, T. P., Morrow, E. M., Anders, T. F., & Sheinkopf, S. J (2017). Brief Report: Factors Influencing Healthcare Satisfaction in Adults with Autism Spectrum Disorder. Journal of autism and developmentaldisorders, 47(6),p 1896-1903.
-Gerhardt, P. F., & Lainer, I. (2011). Addressing the needs of adolescents and adults with autism: A crisis on the horizon. Journal of Contemporary Psychotherapy, 41(1), p37-45.
-Goldfarb, Y., Gal, E., & Golan, O (2019). A Conflict of Interests: A Motivational Perspective on Special Interests and Employment Success of Adults with ASD. Journal of autism and developmental disorders, p1-9.
-Grob, C. M., Lerman, D. C., Langlinais, C. A., & Villante, N. K (2019). Assessing and teaching jobrelated social skills to adults with autism spectrum disorder. Journal of applied behavior analysis, 52(1),p150-172.
-Gulsrud, A., Lin, C. E., Park, M. N., Hellemann, G., & McCracken, J (2018). Selfinjurious behaviours in children and adults with autism spectrum disorder (ASD). Journal of intellectual disability research, 62(12), p1030-1042.
-Hendricks, D (2010). Employment and adults with autism spectrum disorders: Challenges and strategies for success. Journal of Vocational Rehabilitation, 32(2), 125-134.
-Hillier, A.& Galizzi, M (2014) Employment outcomes for young adults with autism spectrum disorders. Review of Disability Studies: An International Journal, 10(1–2),p 69–81.
-Hohn, D., Mataw, S., Someren, w. & Begeer, S (2019). Insomnia Severity in Adults with Autism Spectrum Disorder is Associated with sensory Hyper-Reactivity and Social Skill Impairment. Journal of Autism and Developmental Disorders doi: 10.1007/s10803-019-03891-8..
-Keenan, M (2007). Meeting the needs of families living with children diagnosed with autism spectrum disorder. 1096.
- Khalifa, G., Sharif, Z., Sultan, M., & Di Rezze, B (2019). Workplace accommodations for adults with autism spectrum disorder: a scoping review. Disability and rehabilitation, 1-16. https: //doi.org/10.1080/09638288.2018.1527952
-Knüppel, A., Telléus, G. K., Jakobsen, H., & Lauritsen, M. B (2019). Characteristics of Young Adults with Autism Spectrum Disorder Performing Different Daytime Activities. Journal of autism and developmental disorders, 49(2),p 542-555.
-Laugeson, E. A., & Ellingsen, R (2014). Social skills training for adolescents and adults with autism spectrum disorder. In Adolescents and adults with autism spectrum disorders. Springer, New York, NY. p 61-85
-Lee, G. K., Krizova, K., & Shivers, C. M (2019). Needs, strain, coping, and mental health among caregivers of individuals with autism spectrum disorder: A moderated mediation analysis. Autism. https: //doi.org/10.1177/1362361319833678
-Lee, G. K., Krizova, K., & Shivers, C. M (2019). Needs, strain, coping, and mental health among caregivers of individuals with autism spectrum disorder: A moderated mediation analysis. Autism. https: //doi.org/10.1177/1362361319833678
-Lorenc, T., Rodgers, M., Marshall, D., Melton, H., Rees, R., Wright, K., & Sowden, A. (2018). Support for adults with autism spectrum disorder without intellectual impairment: Systematic review. Autism, 22(6),p 654-668.
-Maenner, M. J., Smith, L. E., Hong, J., Makuch, R., Greenberg, J. S., & Mailick, M. R (2013). Evaluation of an activity of daily living scale for adolescents and adults with developmental disabilities. Disability and Health Journal, 6(1),p 8-17.
-Meeting the Needs of Adults with Autism: A Blueprint for the Future (2006). the New Jersey Center for Outreach and Services for the Autism Community (COSAC), p83-91.
-Nagib, W., & Wilton, R (2019). Gender matters in career exploration and job-seeking among adults with autism spectrum disorder: evidence from an online community. Disability and rehabilitation, p.1-12.
-Neary, P., Gilmore, L., & Ashburner, J. (2015). Post-school needs of young people with high-functioning autism spectrum disorder. Research in Autism Spectrum Disorders, 18,p 1-11.
-Nicolaidis, C., Kripke, C. C., & Raymaker, D. (2014). Primary care for adults on the autism spectrum. The Medical clinics of North America, 98(5), p1169.
-Pérez-Fuster, P., Sevilla, J., & Herrera, G (2019). Enhancing daily living skills in four adults with autism spectrum disorder through an embodied digital technology-mediated intervention. Research in Autism Spectrum Disorders, 58, p54-67.
-Poon, K. K., & Sidhu, D. J. (2017). Adults with autism spectrum disorders: a review of outcomes, social attainment, and interventions. Current opinion in psychiatry, 30(2), p77-84.
-Rattaz, C., Michelon, C., Munir, K., & Baghdadli, A (2018). Challenging behaviours at early adulthood in autism spectrum disorders: topography, risk factors and evolution. Journal of Intellectual Disability Research, 62(7),p 637-649.
-Reid, D. H. (2019). Training Staff to Provide Quality Support for Adults with Autism Spectrum Disorder: Recommended Practices and Target Skills. Advances in Neuro developmental Disorders, p 1-11.
-Saeki, M., & Powell, A (2008). Social care: assessment of need for adults with an autism spectrum disorder. National Autistic Society.
-Sevlever, M., Roth, M. E., & Gillis, J. M. (2013). Sexual abuse and offending in autism spectrum disorders. Sexuality and Disability, 31(2), p189-200.
-Smith, M. J., Fleming, M. F., Wright, M. A., Losh, M., Humm, L. B., Olsen, D., & Bell, M. D (2015). Brief report: Vocational outcomes for young adults with autism spectrum disorders at six months after virtual reality job interview training. Journal of Autism and Developmental Disorders, 45(10),p 3364-3369.
-Sosnowy, C., Silverman, C., & Shattuck, P (2018). Parents’ and young adults’ perspectives on transition outcomes for young adults with autism. Autism, 22(1), p29-39.
-Taylor, J. L., Smith DaWalt, L., Marvin, A. R., Law, J. K., & Lipkin, P (2019). Sex differences in employment and supports for adults with autism spectrum disorder. Autism, 1362361319827417.
-Wagner, D. V., Borduin, C. M., Mazurek, M. O., Kanne, S. M., & Dopp, A. R (2019). Multisystem Therapy for Disruptive Behavior Problems in Youths with Autism Spectrum Disorder: Results from a Small Randomized Clinical Trial. Evidence-Based Practice in Child and Adolescent Mental Health. p1-13.
-Waisman Activities of Daily living Scale (W-ADL).Waisman Center, University of Wisconsin-Madison, mjmaenner@wisc.edu.
-Wei, X., Yu, J. W., Wagner, M., Hudson, L., Roux, A. M., Shattuck, P., & Blackorby, J. (2018). Job searching, job duration, and job loss among young adults with Autism Spectrum Disorder. Journal of Vocational Rehabilitation, 48(1), p1-10.
-Whittenburg, H. N., Schall, C. M., Wehman, P., McDonough, J., & DuBois, T (2019). Helping High School-Aged Military Dependents with Autism Gain Employment through Project SEARCH+ ASD Supports. Military medicine.
-Zwicker, J., Zaresani, A., & Emery, J. H (2017). Describing heterogeneity of unmet needs among adults with a developmental disability: An examination of the 2012 Canadian Survey on Disability. Research inDevelopmental Disabilities, 65, p1-11.